Having completed my apprenticeship as ghost writer for Jack, I think it is time now to introduce myself properly. My name is Duncan, I am 44 years old, married with a Son aged 13 and a Daughter aged 12. When I started writing Jack’s Blog I did so as a way of giving an insight into what it was like for a family to live with Parkinson’s Disease. I wanted to share the day to day things that are not always visible to people outside of our immediate family. I didn’t want to come across as preaching or self pitying, because that is simply not me.
I was diagnosed with Early Onset Parkinson’s Disease 12 years ago. At the time I knew nothing about the condition, but needless to say I know a little bit more about it now. It has been a bit of a roller coaster ride, not just for me, but for family, friends and colleagues also, they didn’t ask to come on the ride, but so far none of them have asked to get off either. Supporting me throughout, from the shock of the initial diagnosis, to helping me to finally learn to live with Parkinson’s Disease they have stood their ground and so must I.
Yes I have Parkinson’s Disease, but what but it does mean for me now? Have I changed? I have no idea what my life would be like if I had not been diagnosed with Parkinson’s Disease 12 years ago. Last Saturday, I came to the realization that I don’t care about what might have been anymore. Not everything in my life has changed, just the way I was looking at it. My wife, friends, and family still call me Duncan and my children still call me Dad. I realized that life with Parkinson’s is what you make of it, not by avoiding the things you think you can’t do, but trying the things that you want to do, even if you are afraid you might fail.
Where was I when this struck me? I was on a tee box for the first time in 12 years having not picked up a golf club since I was diagnosed. Nervous, not wanting to embarrass myself I had already tried to back out at the last moment, but my playing partners were having none of it. I may have lost 6 balls in the space of 9 holes, I did loose count of how many strokes I had taken and missed make-able putts from 12 inches. But I really enjoyed myself and so did the rest of the 4 ball…. Wife, Daughter and Son. I want to play again, and so do they, but we are not going to wait 12 years for the next one!!